Once you have found your voice and identified what you need, you must verbalize those needs to start to use it.

What that means is different for each person. Maybe, for you, it means speaking up at your next oncology appointment about a symptom you were embarrassed to discuss. Maybe it means pushing back when you feel invalidated or unheard.

While doctors may know about your cancer, you are the expert of your own experience. By sharing your story, you are providing a valuable resource to others in a similar situation. We accept written and video submissions for our blog and Tell Your Story Program.

Your experience during and after treatment is also extremely valuable in the formation of new treatments. Consider lending your voice to patient experience research like The GRYT Project. Not only will you have the opportunity to be heard, but you will be helping to improve quality of life and health outcomes for others.

Discover resources here to navigate what it means to use your voice and how by doing so, you can make a difference for yourself and others.

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The Importance of Your Voice

More and more healthcare organizations are realizing the importance of including the patient perspective in the development of clinical trials and the subsequent use of approved therapies. However...


Liz H.

Choosing to Use Your Voice

Liz shares her experience of her bladder cancer diagnosis, deciding to not be silent about her cancer, and her drive to become a bladder cancer advocate. "You don’t have to reach the masses with your experience, you just have to reach one person."