July 2022 Monthly Meetup Summary

~Lauren Lastauskas with editorial notes from Liz Hiles 

In case you haven’t signed up for our Monthly Meetups, you should know that our Vice President of Community, Lauren Lastauskas, always sends out a summary of the topics that were discussed with links to resources. Check out what you missed!

Below is the Meetup Summary from the July 12th Monthly Meetup.

We hope that this will encourage you all to attend meetups in the future and get the support you need…or the support you didn’t know you needed!

Hi everyone,

I hope you are staying cool and soaking up the last few weeks of summer. Thank you for registering and/or attending our July Meet Up via Zoom on July 12th. In this email, you can register for upcoming events, view opportunities to share your experience, and see a summary of the main topic we discussed last month.

The next Monthly Meetup is on August 9th at 7 pm ET / 6 pm CT / 4 pm PT

Our Monthly Meetup takes place on the second Tuesday of every month at 7 pm ET. You can register for one month or for the entire year. This link shows other events happening at GRYT Health and our partnering organizations. 

 

“Aging Out of AYA: What’s Next?” Program on August 25th at 7pm ET / 6pm CT / 4pm PT 

As always, it’s free to attend, but registration is required. We’re teaming up with our friends at Young Adult Survivors United (YASU) to explore the unique challenges people face when they are approaching and/or have aged out of being an AYA (adolescent and young adult cancer survivor). You can learn more about the program and register HERE.

***Reminder: registration for the Global Virtual Cancer Conference is now OPEN*** 

You don’t want to miss this free, virtual, multi-day event in November! You can register here!

Opportunities for you to use your voice and share your experiences

GRYT Health Research Opportunity: 

GRYT Health, in partnership with Syneos Health, is looking for patients 18 years of age and older who are considering or have received a CAR T-cell therapy infusion as part of a clinical trial within the United States. Interested in participating? Find more information here.

Participate in Research with GRYT Health:

The GRYT Project is a registry that you can join to be alerted when new patient experience research opportunities become available. You can learn more here about the research GRYT Health does and how your experience can make a difference for others. 

The topic discussed at our July Meet Up

Clinical Trials: We chatted quite a bit about clinical trials, why they’re so important, how to find and/or join one, and what it’s like to participate in one. I wanted to provide some additional information about clinical trials that the GRYT Health team has worked on, as well as outside resources. 

~Here is a quick read from Dr. Dan about trials and a common misconception about them

~Dr. Dan completed a blog series about clinical trials, and I recommend reading through them in the order I have listed the links:

Basics of cancer clinical trials

Is a cancer clinical trial right for you? 

How to find a clinical trial

~Last summer, we held a 3-part program series titled “Cancer Research and You.” Below, I’ve listed the links to the summaries of each program, which also contain information on how to watch the recordings.

Cancer Research and You: Understanding Clinical Trials

Cancer Research and You: Your Experience Empowers Change

Cancer Research and You: Real-World Stories from Research Participants 

~Clinical trial Q&A videos I recorded with Dr. Dan

Part 1

Part 2  

~Previous GVCC sessions about clinical trials

The Whole Wide World of Clinical Trials

Making Clinical Trials More Accessible to All

~Previous Diversity in Oncology sessions about trials

Improving Representation of Diversity in Clinical Trials Through Academia & Community Collaboration

Experience of Diverse Physicians / PIs in Clinical Research

Experience of Diverse Patients and Families in Clinical Trials

~Information on trials from Cancer Support Community

~Tons of information about clinical trials from the National Cancer Institute

~Clinical trial information from The Leukemia and Lymphoma Society (LLS)

Telling a short version of your story: Our Engagement Specialist, Liz, recently wrote a great blog about the importance of having a short version of your story. I wanted to make sure I shared it with all of you. You can view it here.

As always, thank you for attending the meet-up. It was great to meet new community members and see the “regulars,” too! Please do not hesitate to reach out with any questions or suggestions on how to improve GRYT Health’s programs!

Lauren Lastauskas

Lauren Lastauskas

Vice President, Community, Gryt Health

Comment below and share why you meet up! See you at the next one!

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