Jason’s Ewing’s Sarcoma Story

06/14/2019 By Jason Rouleau 

Jason goes outside his comfort zone to share his story about being diagnosed with Ewing’s sarcoma at a young age. He shares how attending young adult cancer conferences changed his life for the better.

Transcript: Alright guys, this is not exactly my strong suit, so I’m stepping into the zone here. Anyways, I myself am a two-time cancer survivor. I was diagnosed with Ewing’s sarcoma at five years old. Obviously, you know, just pins, ya know, we all know, right?. Yeah, so that was obviously difficult growing up with and I feel like the older you get, you know, things become more and more prevalent. Then you start to notice, you know, other people how they look at you and how you’re perceived. So I struggled with that a little bit. I always wore sweatshirts through high school and the guys were all like “Aren’t you hot man like it’s so hot.”  It’s like 90 degrees and I’m wearing a sweatshirt. So then 10 years later, I relapsed with the same thing in my abdomen. So it was like “Alright, let’s do it again.” And it just is really has taken such a toll on me and, like we’ve all learned, that this community right here has changed my life. This is my second time coming and I won’t ever miss another one and I’m shakin’ right now… I’m at a loss for words and everybody here I just value everything. And like I said, I couldn’t say enough about Stupid Cancer and CancerCon. So I don’t know if I can get anything else out so thank you very much.

Editor’s note: As of 3/10/2022, Jason provided us with an update on his life.

Jason Rouleau is a 2-time cancer survivor. Initially diagnosed at age 5, he relapsed 10 years later. He has battled through it all, both physically and mentally. Jason has struggled with self-image and mental blocks since treatment. Losing half of his arm when I was 5 made life challenging from early on. He was then diagnosed with epilepsy at age 25. He has bounced back from treatments to triumph, however! He is now 33 years old and happy, healthy, and free of negativity. 

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